Accelerated Cure Project for Multiple Sclerosis –
The Accelerated Cure Project for Multiple Sclerosis (ACP) is a patient-founded national non-profit organization dedicated to accelerating advances toward a cure for MS.
Barts MS Blog –
Multiple Sclerosis Research – The aim of this Blog is for the Barts and The London Neuroimmunology Group to update you on the latest research in MS with an emphasis on the research we are involved in.
Can Do Multiple Sclerosis –
Can Do MS delivers educational programs on exercise, nutrition, symptom management to inspire and motivate long-lasting change for those with MS and their families to help them thrive.
To be the pre-eminent organization of Multiple Sclerosis health care providers improving the lives of those affected by multiple sclerosis.
- Stimulating and facilitating research in the field of multiple sclerosis.
- Developing vehicles to share information and knowledge among CMSC members and the health care community, for the benefit of those affected by MS.
- Developing and implementing mechanisms to influence health care delivery.
- Partnering with other organizations to accomplish the above.
Daily Strength Multiple Sclerosis Support Group –
This community is a place where members can discuss current events and weigh in on what’s going on in the world.
DIRECT-MS was formed in 1998 by families affected by MS. Our charity is committed to two main goals:
- To provide reliable, science-based information on the role that nutritional factors play in MS so as to allow those affected by MS to make an informed decision on whether or not to use dietary strategies for managing the disease and for preventing it in close relatives.
- To fund scientific research that properly tests the effectiveness of dietary strategies for slowing or halting MS progression and for preventing it in the first place.
- In July, 2009 Direct-MS became aware of the major role that impaired venous drainage from the brain (CCSVI) plays in MS. Since that time, we have expanded our scope to provide timely information on CCSVI and to provide funding for cutting edge research on the role that CCSVI plays in MS and the value of CCSVI treatment for major symptom reduction in MS and for slowing or halting disease progression.
DIRECT-MS is distinctly different from most other MS charities. First of all, as a grass-roots charity, DIRECT-MS is completely volunteer-driven with very low overhead costs and no paid staff. 99% of the funds raised through donations and events goes directly to funding scientific research or to making available information on nutrition and multiple sclerosis.
Furthermore, much of the information prepared and distributed by DIRECT-MS is not available from other MS charities that concentrate mainly on drug therapies. Although drug therapies are of some value, they do not address the causal factors of MS. DIRECT-MS believes that understanding the causal factors and using therapies that counter such factors hold the key to effectively treating MS and for preventing it in the first place.
People living with MS are the heart and soul of iConquerMS™.iConquerMS™ empowers all people living with MS to participate in research. Unlike other data-gathering programs, iConquerMS™ is governed and driven by people living with MS.
iConquerMS™ is also a bridge, connecting you and others living with MS to the research community. You can suggest research topics and questions in areas that matter to you. You will also receive updates on what researchers are learning from all the collected data.
iConquerMS™ is not a stand-alone effort. iConquerMS™ is part of a national research network called PCORnet that will enable collaborative partnerships to improve healthcare and advance medical knowledge in ways never before possible in the United States.
All kinds of people from around the country have been involved at every step of the initiative, from the original idea to the creation of this website to the development of a national campaign.
At any time, you can provide feedback about this website and the entire iConquerMS™ initiative.
International Progressive MS Alliance –
Although there is dramatic and life-changing progress in the understanding and treatment of relapsing remitting MS, the discoveries that will lead to treatment for progressive MS have remained stubbornly elusive.People with progressive multiple sclerosis (MS) have waited too long for solutions. If nothing changes, we are likely decades away from the necessary treatments.This situation is unacceptable for people with MS, their families, and all those that care for and about people affected by MS. It is imperative that the global MS community drive the development of new treatment options.
The Progressive MS Alliance was initially established in 2012 as the International Progressive MS Collaborative.
The Alliance’s six original founding members made a joint commitment to speed up the development of treatment for progressive MS by removing scientific and technology barriers.
In September 2013 the founding members entered into a memorandum of understanding, formally establishing the Progressive MS Alliance.
– See more at: http://www.progressivemsalliance.org/about-us/#sthash.TFTal31C.dpuf
Live Wise MS –
Who we are
LiveWiseMS is a unique, trusted resource connecting people living with MS, both patients and care partners, to specific content relevant to their symptoms and conditions.
It is our goal to promote healthy living, improve quality of life, and enhance patient interactivity. Our site contains multiple features for MS patients to investigate and explore as they develop an understanding of their disease and accompanying symptoms.
MedlinePlus is the National Institutes of Health’s Web site for patients and their families and friends. Produced by the National Library of Medicine, the world’s largest medical library, it brings you information about diseases, conditions, and wellness issues in language you can understand. MedlinePlus offers reliable, up-to-date health information, anytime, anywhere, for free.
MS Trust –
The Multiple Sclerosis Trust is a not-for-profit organisation that provides information, education, research and support for MS sufferers and their families. Based in the UK, the organisation runs multiple research projects and provides up-to-the-minutes news and information on the latest developments in the medical field. Its blog, which it runs through the main site, is written by various members of its staff, including its policy team, communications team and fundraising team. It also features regular guest posts from health and policy industry professionals, as well as from Trust members.
MS Views and News –
An informational web-blog (formerly known as Stu’s Views and MS News), now published by MS Views and News, a patient advocacy organization. The information on this blog helps to Empower those affected by Multiple Sclerosis globally, with educational information, news and community resources.
MS World.org –
We are here to provide support and information to people living with multiple sclerosis. MSWorld offers chat rooms, message boards, a wellness center, creative center, r
esource center, conference center and an arcade, along with social networking connections on Facebook and Twitter.We welcome your contributions and most importantly, by joining our growing community of people who share the day-to-day challenges of living with MS, your perspective and insight can help others.If you have a noteworthy event or idea for our website, we’d love to hear from you. Please send us an email at: LetUsKnow@msworld.org.MSWorld is an all-volunteer team who manage the MSWorld website and are living with MS, in the process of being diagnosed or provide care to someone else living with MS. We understand what it means to live with this disease and are here to provide support in the best way we can. We are unique as a Patients Helping Patients organization, committed to helping people out of isolation.
Mesenchymal Stem Cells for Multiple Sclerosis –
Recent advances in our understanding of stem cell biology, such as the availability of innovative techniques, which allow stem cells to be obtained on a large scale, and the increasing pressure from patients for tissue repair strategies have launched stem cell treatments as one of the most exciting and difficult challenges in the field of multiple sclerosis (MS).
The adult stem/progenitor cells from bone marrow and other tissues referred to as mesenchymal stem cells or multipotent mesenchymal stromal cells (MSC) display a significant therapeutic plasticity as reflected by their ability to enhance tissue repair and influence the immune response both in vitro and in vivo. Pre-clinical experiments in an animal model of MS have demonstrated that intravenous MSC administration induces immune tolerance and promotes neuroprotection.
Multiple Sclerosis Discover Forum –
The Multiple Sclerosis Discovery Forum (MSDF) is an online resource that aims to accelerate progress toward cures for multiple sclerosis and related disorders by sparking new ideas and catalyzing unforeseen connections. The site focuses attention on what is known and not yet known about the causes of these conditions, their pathological mechanisms, and potential ways to intervene. By communicating this information in a way that builds bridges among different disciplines, we will open new routes toward significant clinical advances.
Multiple Sclerosis Journal –
Multiple Sclerosis Journal, formally “Multiple Sclerosis” is a peer-reviewed international journal that focuses on all aspects of multiple sclerosis, neuromyelitis optica and other related autoimmune diseases of the central nervous system.
The journal for your research in the following areas:
• Biologic basis: pathology, myelin biology, pathophysiology of the blood/brain barrier, axo-glial pathobiology, remyelination, virology and microbiome, immunology, proteomics
• Epidemology and genetics: genetics epigenetics, epidemiology
• Clinical and Neuroimaging: clinical neurology, biomarkers, neuroimaging and clinical outcome measures
• Therapeutics and rehabilitation: therapeutics, rehabilitation, psychology, neuroplasticity, neuroprotection, and systematic management
Outstanding information presented in a topical based format.
Multiple Sclerosis.net –
At MultipleSclerosis.net we empower patients and caregivers to take control of MS by providing a platform to learn, educate, and connect with peers and healthcare professionals.
Multiple Sclerosis News Today –
Multiple Sclerosis is an increasingly prevalent disease in the U.S. today, with at least 300,000 diagnosed with one of its four forms. It is estimated that the patient population could be as large as 400,000 in the U.S., due to the fact that diagnoses of the disease are not well-documented by the CD and other public health monitors. Multiple Sclerosis News Today is the only online digital publication that seeks to cover the entirety of multiple sclerosis-related science and research news in a 24-hour news cycle format for MS patients and their families. Our team of editorial staff is composed of scientists, researchers, nurses, and journalists — all of whom are committed to sourcing the latest and presenting it in such a way that patients can stay informed about the newest scientific breakthroughs, therapies, and treatment options for living with the disease.
Multiples Sclerosis Resource Center –
Welcome to the Multiple Sclerosis Resource Centre. The Resource Centre provides you with free access to the latest peer-reviewed clinical information relating to the treatment of Multiple Sclerosis.
Multiple Sclerosis Trust –
The MS Trust is a UK charity that believes that no one should have to manage MS alone.We produce MS information you can trust and support the MS specialist health professionals you need.
My MS Team –
MyMSTeam is a free social network that makes it easy for you to:
- get the emotional support you need from others like you, and
- gain practical advice and insights on managing treatment or therapies for multiple sclerosis
Myelin Repair Foundation –
Since 2004, the Myelin Repair Foundation has funded basic research that has led to the publication of more than 120 peer-reviewed scientific articles, the identification of more than 100 novel potential myelin repair treatment targets and the discovery of multiple new research tools—animal models and assays—that may help to accelerate research on all neurological diseases. The Myelin Repair Foundation is supported by the generous gifts of individuals, foundations and corporations. Since 2004, we have raised $60 million to support our myelin repair research program.
National Library of Medicine –
The National Library of Medicine (NLM), on the campus of the National Institutes of Health in Bethesda, Maryland, has been a center of information innovation since its founding in 1836. The world’s largest biomedical library, NLM maintains and makes available a vast print collection and produces electronic information resources on a wide range of topics that are searched billions of times each year by millions of people around the globe. It also supports and conducts research, development, and training in biomedical informatics and health information technology. In addition, the Library coordinates a 6,000-member National Network of Libraries of Medicine that promotes and provides access to health information in communities across the United States.
Overcoming Multiple Sclerosis –
Overcoming Multiple Sclerosis (OMS) promotes a program of diet and lifestyle management that has been shown to improve the health and lives of people with MS. Professor George Jelinek, who was diagnosed with MS in 1999, developed the rigorously researched OMS Recovery Program more than 15 years ago.
Patients Rising University –
Patients Rising University was developed to provide tools and teaching for patients and advocates with the desire to learn new ways to navigate an increasingly complex health care system and ensure that the patient voice isn’t muted when regulatory decisions and policy choices are made. Barriers to access are real, and often similar across disease states, but there are also unique challenges faced by patients within specific diseases – especially multiple sclerosis.
Positive Living with MS –
Positive Living with MS was started in 2014 by Penelope Conway as a way to help others with MS to stay positive in the midst of a terrible disease.
She believes that staying positive and holding onto hope is the key to waking up each morning with the strength to get through the day.
Multiple Sclerosis may never go away, but neither will her determination and her drive to help others through the journey.
A variety of health problems are examined (eg., infertility, epilepsy, dementia, diabetes, premenstrual syndrome, arthritis, menopause), and the therapeutic uses of progesterone, pregnenolone, thyroid, and coconut oil are frequently discussed.
My approach gives priority to environmental influences on development, regenerative processes, and an evolutionary perspective. When biophysics, biochemistry, and physiology are worked into a comprehensive view of the organism, it appears that the degenerative processes are caused by defects in our environment.
Shift.ms is a social network for people with multiple sclerosis. We aim to create a positive, enabling community which empowers MSers to acknowledge their MS, rethink how to achieve their ambitions and get on with their lives.
Terry Wahls, M.D. –
Dr. Terry Wahls is a clinical professor of medicine at the University of Iowa where she conducts clinical trials. She is also a patient with secondary progressive multiple sclerosis, which confined her to a tilt-recline wheelchair for four years. Dr. Wahls restored her health using a diet and lifestyle program she designed specifically for her brain and now pedals her bike to work each day. She is the author of The Wahls Protocol: How I Beat Progressive MS Using Paleo Principles and Functional Medicine, The Wahls Protocol: A Radical New Way to Treat All Chronic Autoimmune Conditions Using Paleo Principles (paperback), and the cookbook The Wahls Protocol Cooking for Life: The Revolutionary Modern Paleo Plan to Treat All Chronic Autoimmune Conditions.
She conducts clinical trials that test the effect of nutrition and lifestyle interventions to treat MS and other progressive health problems. Learn more about Dr. Wahls’ clinical trials here. She also teaches the public and medical community about the healing power of the Paleo diet and therapeutic lifestyle changes that restore health and vitality to our citizens. She hosts a Wahls Protocol Seminar every August where anyone can learn how to implement the Protocol with ease and success. Follow her on Facebook (Terry Wahls MD) and on Twitter at @TerryWahls.
This is MS –
This Is MS Multiple Sclerosis Community: Knowledge & Support
Welcome to the world’s leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
World MS Day – A day to celebrate global solidarity and hope for the future
World MS Day is officially marked on the last Wednesday of May every year, though events and campaigns take place throughout the month of May.
It brings the global MS community together to share stories, raise awareness and campaign with and for everyone affected by multiple sclerosis.
In 2009, the Multiple Sclerosis International Federation (MSIF) and its members initiated the first World MS Day. Together we have reached hundreds of thousands of people around the world, with a campaign focusing on a different theme each year.
Others information sites that discuss MS
Flyer Talk-Disability Travel –
FlyerTalk features discussions and chat boards that covers the most up-to-date traveler information. An interactive community dedicated to your favorite topic: travel! That’s right: all travel, all the time. The FlyerTalk forums are open for business 24 hours, 7 days a week. Even better, all travelers — from vacation travelers to mileage junkies — are welcome in the community. Just choose a forum and you can get to the business at hand: conversing about programs, how to make the most of your miles and points, general travel, airports, destination and dining information.
Healing Well –
HealingWell.com is about living mindfully and healing well with chronic illness. It is a community where people come together, reach out, find support and understanding, and share what works for them with others. HealingWell.com features a thriving support community, blog, videos, newsletter, articles and resources to help you actively manage the challenges of living with chronic illness. The goal is simple….to help you take control of your illness and start “healing well”.
Health seekers have made us the fastest growing health information site. Over 40 million people turn to Healthline every month.Whether you’re here to learn more about a health condition, research a medication, tap into one of our communities, or get some tips for a healthier lifestyle, you’re in the right place. You’ll find content that’s informative, easy to understand, and engaging. You’ll also find a compassionate team of professionals who genuinely care about people.
The Institute for Functional Medicine –
IFM’s mission is to ensure the widespread adoption of Functional Medicine as the standard of care.
Mayo Clinic –
Mayo Clinic is a nonprofit organization committed to clinical practice, education and research, providing expert, whole-person care to everyone who needs healing.
Medical News Today –
Founded in 2003, has established itself as a market leader for medical news, providing concise and accurate information that stands out in the ocean of content that is health on the internet.Content is targeted to an educated audience of both healthcare professionals and patients alike. The editorial team provides news from evidence-based, peer-reviewed studies, along with accurate, unbiased and informative content from governmental organisations (e.g. FDA, CDC, NIH, NHS), medical societies, royal colleges, professional associations, patients’ groups, pharmaceutical and biotech companies, among others.produces original, timely and authoritative information from respected, credible sources. The editorial team has a strict code of practice and covers all areas of health and medicine, including rare diseases and conditions – we strive to achieve coverage across all areas of human health.
The Mighty –
Billions of people are facing serious health conditions — including many of us at The Mighty. It’s so easy to feel like we are facing these challenges alone. The truth is, we are all facing disability, disease and mental illness together.
But when we look online for help, all we often find is medical information. We want a community, too. That’s what The Mighty is building.
We publish real stories by real people facing real challenges. We are building a brand and a community around them. Having a disability or disease doesn’t have to be isolating. That’s why The Mighty exists.
We’re creating a safe platform for our community to tell their stories, connect with others and raise support for the causes they believe in. We are stronger when we face adversity together, and we know it. We’ve also partnered with over 200 nonprofit allies to deliver their excellent resources to our community.
New Mobility, Life Beyond Wheels –
The magazine for active wheelchair users. New Mobility was launched in 1989 to bring quality journalism to an underserved readership. Founder Sam Maddox recognized a community of wheelchair users who wanted more information on how to lead active, healthy lives and were willing to speak openly about everything from so-called “walking programs” to sexuality. He tapped seasoned writers with disabilities and college interns alike to produce a unique resource that shattered stereotypes and told real stories of living life on wheels. His greatest coup was recruiting legendary editor Barry Corbet, who led the magazine from 1991 to 2000.
It’s already happening at PatientsLikeMe. We’re a free website where people can share their health data to track their progress, help others, and change medicine for good.
Very Well –
Welcome to Verywell, where you can find trusted advice for a healthier life.
Think of us as your friend who also happens to be a doctor. Or personal trainer. Or dietitian. Verywell is your source for reliable, understandable information on hundreds of health and wellness topics that always keeps the reasons you come to us in mind.
Know more. Feel better.
Dr. Weil –
About Weil Lifestyle: Our mission is to be the leading resource for education, information, products, services and philanthropic contributions based on the principles of integrative medicine.
Quackwatch is an international network of people who are concerned about health-related frauds, myths, fads, fallacies, and misconduct. Its primary focus is on quackery-related information that is difficult or impossible to get elsewhere. Founded by Dr. Stephen Barrett in 1969 as the Lehigh Valley Committee Against Health Fraud (Allentown, Pennsylvania), it was incorporated in 1970. In 1997, it assumed its current name and began developing a worldwide network of volunteers and expert advisors. Our activities include:
- Investigating questionable claims
- Answering inquiries about products and services
- Advising quackery victims
- Distributing reliable publications
- Debunking pseudoscientific claims
- Reporting illegal marketing
- Assisting or generating consumer-protection lawsuits
- Improving the quality of health information on the Internet
- Attacking misleading advertising on the Internet
- Consumer Health Digest, a free weekly e-mail newsletter
- The healthfraud discussion list, which has about 600 member
Web MD –
WebMD provides valuable health information, tools for managing your health, and support to those who seek information. You can trust that our content is timely and credible.