Access Denied –
Access Denied is a blog that mainly focuses on the frustrations of one person suffering from MS. The blogger, Herrad, has been writing since 2006 and has an impressive number of highly literate blog posts describing his personal experiences and difficulties. Herrad’s blog is less factual, and his posts adopt a poetic and dream-like style on many occasions. Posting on a daily basis – sometimes even more frequently – Herrad has built up a collection of interesting experiences that will be useful reading for those seeking real honesty in terms of how MS impacts on everyday life.
Active MSers –
My goal with ActiveMSers is to provide practical information on how to stay active (physically, intellectually, and socially)—when traveling, playing in the outdoors, exercising, or just plain enjoying life—regardless of our disease and the sometimes devastating symptoms it throws at us. In the process, I hope to spotlight other active MSers who can provide inspiration. I hope to raise awareness about both the seriousness of multiple sclerosis and that people with MS are also marathoners, midfielders, and mountaineers. And I hope to inspire a worldwide community of ActiveMSers who strive to stay active.
Bart’s Blog –
The Multiple Sclerosis Research blog is a platform through which the London Neuroimmunology Group aims to update the general public on its latest research and developments. The factual and scientific blog also provides information on other, more general, developments in the field of MS treatement. The main bloggers are Prof G and The MouseDoctor, two key researchers at the institute. Through their site, they aim to be a key resource for those looking for contacts, literature and information in the medical field of MS research.
BBH With MS –
MS Survivor, Inappropriate Momma, Recently Diagnosed Redneck – Living With Multiple Sclerosis and Finding The Reasons to Laugh and Smile.
What is BBH?
BOOBS, BOOTS & HAIR
This might seem like an odd choice for a blog title, but for me, it is a funny (and powerful) reminder to always be strong; to look for the positive, and reasons to laugh and smile!
Bifurcate in the Road –
Photos and blogging by Kmilyun.
Ataxia through hell. “Life is like a bucket of wood shavings, except for when they are in a pail. Then it is like a pail of wood shavings.” Spongebob Squarepants.
Blog Nation/Multiple Sclerosis –
Part of our mission is to help users discover blogs. Our unique RSS readers allow you to constantly be exposed to new content and bloggers.
Blue Badge Style –
What is a Blue Badge Style Gallery?
The Blue Badge Style (BBS) Gallery is a multi media journey through a venue for people who are less physically able. In the same style as the venue’s brand it highlights the facilities and notes any potential obstacles. You can create your own BBS Gallery and it will be up and running in hours if you follow our instructions below or just contact us for more information.Why a Blue Badge Style Gallery – ‘A Single Perspective of Disability’.
AGE & OTHER TRIVIA:
Hi, I’m Katja.
I’m a person with multiple sclerosis who uses a wheelchair. I’m also a software engineer for an aerospace company, a wife, a mother, a singer (in Cantabile), a web designer, a traveler and an athlete. I grew up in a Foreign Service family and was lucky enough to be able to live in several different countries before returning to the United States to attend high school and college. Now I live in Colorado with my husband and a lot of sports equipment.
brokenclay.org/journal is first and foremost a personal blog; I don’t pretend (or intend) to represent everyone with a disability. It’s about my life with a disability—the frustrations, the tricks, the tips, and the comedy. So often, when I am trying to figure out how to do something (take a trip in an airplane, learn how to handcycle, bake bread, fill in the blank…) as a person with a disability, the wonderful world of Google and the internet fails me, and so once I figure out how to do it, I write it down here.
But you don’t look sick…-
Lisa Marie – A nurse by trade, I found myself in the most ridiculous of circumstances when I got the sudden onset of a rare neurological disease called Transverse Myelitis in 2014. Forced to stop working (a “normal” job), I found myself frustrated because, quite frankly, I like to work. I started a blog called “But You Don’t Look Sick (and all the crap you wish people really new about your auto-immune/neurological disease)” and found an outlet for my pent up cynicism as well as a way to try to help bring some therapeutic laughter into the lives of other dealing with weird diseases that nobody understands.
Caregivingly Yours, MS Spouse Caregiver –
Sharing the trial and error learned lessons of a MS spouse caregiver / carer about family, home care, and transition to the care facility era from 23 years of living with Multiple Sclerosis as a family … a ‘warts and all’ picture of living with MS.
Carnival of MS Bloggers –
I founded the Carnival of MS Bloggers in 2007 to connect the growing MS Blogging Community. My vision was to become the central hub where bloggers could find each other and to feature a collection of independent patient voices.
Click here to get links to other MS blogs from Carnival of MS Bloggers.
Carole’s MS Blog –
The MS Roller Coaster. A ride that never ends.
CCSVI Mammananny –
This is my journey from the very first symptoms of Multiple Sclerosis; 17 years of progressive disability, through the search for a cure to the angioplasty procedure for Chronic Cerebro-Spinal Venous Insufficiency that pulled me out of a wheelchair and into a second chance for life.There is no cure…but we have for the first time a chance for an enhanced quality of life.
Climbing Downhill –
Making the Most of Life with a Progressive Illness.
Dan and Jennifer Digmann –
Sharing stories of our day-t0-day life to inspire and educate people about multiple sclerosis.
Doc It Hurts When I Do This…-
A forum for Multiple Sclerosis patients who are keeping vaudeville alive. Having taken turns writing for radio and reference books–and cranking out an unbearably serious first novel–I’m now exploring the lighter side of life: Having MS.
Ellie’s Blog –
Living Well With MS & Disabilities: Ellie’s Blog
An Empowered Spirit –
Welcome! I’m so glad you’re here.
I have Primary Progressive MS, so how do I lead such a contented life? Before my diagnosis I had a Chemical Engineering degree, an MBA, and a promising career. I had an amazing wife and two wonderful children (still do). I had a nice house with a swimming pool, a big lawn, and a bunch of toys. I was living the dream. I enjoyed a variety of physical activities such as golf, camping, hunting…driving, typing, and dressing myself. Then one day as I was jogging on my treadmill I noticed that my left foot went slap, slap, on the treadmill, whereas my right foot smoothly transitioned from heel to toe, heel to toe. After a year of visits to an assortment of specialists, I was diagnosed with Primary Progressive Multiple Sclerosis, a particularly disabling variety of MS. Twelve years later I sit here in my power wheelchair, dictating to my computer because my hands won’t allow me to type more than a couple of words. I can’t work anymore, and my wife now doubles as my caregiver. I’ve started this blog to help me pass the time while engaged in a productive activity- advocating for the disabled community, of which I am now a reluctant member. I am Mitch, and despite everything I am still Enjoying the Ride.
Empower your life by making positive change! Caroline Craven – Speaker, Life Coach, Writer, & Living with Multiple Sclerosis.
I am a woman, age 61, married 29 years, we have no kids; however one bi-eyed pit-mix dog and three cats and several dust bunnies fill our house. I’ve had MS for 35 years; the numbers keep going up as well they should, I guess. It is what it is, and it’s more than it used to be. MS limits me (boy does it), and, yes, it defines me. It’s not that I no longer have joy in my life; I do. There is always some joy to find amid the trials that each day brings. I love your comments, so if you’re a reader of my blog, please take the time to post a short comment. there’s no word ‘capcha’ here as they go straight to my mail- just know that I delete anonymous comments. Thanks.
A mostly true account of life with a guy, a recently-ex-teenager currently living and working in Japan, a couple of narrow dogs, retirement from a job as a tech writer, a recently-acquired obsession with stalking dead people, and MS.Not necessarily in that order.
A place for couples dealing with illness to find resources and advice, hear stories, and discover support. Whether the illness is chronic or acute, the result of disease or accident, couples can learn strategies for coping with the changes illness brings into our relationships and our worlds. The information provided in this blog is for educational and support purposes only. It should not be used as a substitute for seeking professional care.
This blog is written by a 50-year-old retired, married father of two, who has been living with MS for many years. He has been blogging for four years, and his posts are ramblings – often very personal – about his own experiences. Accessible through Blogger.com, his profile is fairly popular with other users, with 1,500 hits, and his posts provide a forum for other users to empathise with his situation by sharing their own insights into MS.
A WORD ABOUT OUR PHILOSOPHY. We’re a unicorn-free zone. Meaning, we’re not into cutesy bunnies and hearts and flowers and rainbows and unicorns. MS is a crappy disease and we’re dedicated to talking straight about what it means and how it affects our lives–except, of course, when we’re laughing so hard it hurts, which is most of the time. We don’t do platitudes. If you like the glossy ads that say “I climbed Mount Everest because I take (insert drug name here),” we’re not for you. If you’ve ever said “I have MS but MS doesn’t have me,” you need to find another forum, unless you’ve repented or are ready to consider doing so. All that said, there’s probably not anywhere on earth you’ll find a group of people who will understand you better, support you more, or make you laugh harder.
The Lesion Journals –
Welcome! I am a number crunching photographer who loves riding my bicycle really, really fast. I happen to live with Multiple Sclerosis and write about my experiences here on this blog. Thanks for stopping by
Life Beyond 4 Limbs –
Support and motivation for amputees and those using crutches due to a temporary or permanent disablity. My hope is that through telling my story others will find information, support and motivation to rebuild their life after a catastrophic injury.
Life in Spite of MS –
Life in Spite of MS aims to give people an account of living with MS from two different perspectives; the first from the person who has MS, and the second from the family of that person. Cir, the person with MS, and his wife, Akrista, wanted to set up the blog as a place to speak openly about MS, and to engage with others. An interactive site, it encourages involvement from other people, actively seeking a range of stories and experiences. The dedication of Cir and Akrista is apparent through the quality of this site; it contains a huge amount of information on the disease, to rival any good medical site. From symptoms, to diagnosis, to living with MS, this site offers personal yet unbiased advice and opinion on every aspect of the disease. A positive and uplifting site, Life in Spite of MS also contains a shop, links to resources, fun and games, and a forum.
In 2008, I was diagnosed with multiple sclerosis.
At 31, I was a new father, a recent MBA graduate and a Director at a Fortune 500 company. MS has altered my path and after an early retirement, I am now navigating life on a road less traveled.
A native of Northern Virginia, I currently reside in South Texas with my wife and two young children.
Living with MS is a daily battle. MS is the invisible disease or at least it is for most people. We fight many emotional and physical symptoms all the time. We need as much support as we can get. However, due to the invisible symptoms we tend not to get a lot of support and that brings on more emotional stress which in return brings on more MS symptoms. A Vicious cycle.
Living! With MS –
This thirtysomething blogger writes about how yoga helps her manage MS. She also ruminates on the importance of creating items and experiences to enjoy.
Click here to get to links to other sites about MS blogs at the bottom of the Living! With MS main page.
About Cathy Aten:
Conversations regarding disease have always been colored by an ‘either-or’ mentality. Either we are healthy or we are sick. With the advent of numerous autoimmune illnesses having questionable causes and few count-on-able antidotes, we now have a significant part of our population living in the grey area; having a full life while managing the challenges of a high-maintainence body.These postings are my way of beginning to de-pathologize disease. I was diagnosed with Multiple Sclerosis in 2000. I have been a working artist for 25 years and now spend most days in a wheelchair. I graduated with a BFA from The Center For Creative Studies, College of Art and Design in Detroit, Michigan. I began working first as a textile designer creating hand-painted fabric for interior designers and also for the fashion industry in Boston. In 1987 I moved to Santa Fe, New Mexico and found home. I segued into oil painting on highly textured surfaces always inspired by the local landscape and exhibited my work successfully for many years. The diagnosis of MS was shocking as my body has always done what I wanted it to do: champion gymnast as a young girl, lots of Iyengar Yoga as an adult.I decided to get healthy. To me that meant giving up anything that felt toxic: art materials, relationships, food and beliefs. I began a new era as an artist (now words are my art form) and as a woman. Relationships have changed and I let them. My diet is cleaner. Each day includes one or more ‘little deaths’ as my carefully constructed identities fall away to reveal someone new to me but someone I happen to like very much. (Except on the days when I don’t)The images I use to complement the writing are drawn from my own work over the past 25 years. As my body becomes more constricted my heart seems to widen and want to reach out more than I have done in the past. This presence of both an opening of my soul and limited physical movement makes me wonder what the definition of ‘health’ really is? These writings are more of an invitation than anything else; to myself to come forward with a softness, strength and vulnerability, and to you as the reader to witness, perhaps be touched in some way and come along with me as we all decide what is REALLY essential to thrive in our changing world.
Sharing the struggles and triumphs of being a MS Caregiver.
MS with a Southern accent –
Here are three good reasons to have a blog titled “MS with a Southern accent.”
First, a lower percentage of people in the southern U.S. are said to have MS as compared to those who live in the northern part of the country. In fact, in all parts of the world, MS is more common at northern latitudes that are farther from the equator and less common in areas closer to the equator. As a result, this blog approaches MS from a slightly more tropical perspective.
Second, Southerners are purported to be naturally born storytellers, so this blog should practically write itself with only a little help from me.
And third, the Deep South is the hottest and most humid place to live in the whole country. Throw MS into the mix, and it’s not pretty. It makes my hair frizzy and MS symptoms worse. I probably spend at least four months of each year holed up in my own home so that I can minimize the effects of heat and humidity. On the other hand, I have plenty of time to write.
Looks like I found my niche.
MS Trust –
The Multiple Sclerosis Trust is a not-for-profit organisation that provides information, education, research and support for MS sufferers and their families. Based in the UK, the organisation runs multiple research projects and provides up-to-the-minutes news and information on the latest developments in the medical field. Its blog, which it runs through the main site, is written by various members of its staff, including its policy team, communications team and fundraising team. It also features regular guest posts from health and policy industry professionals, as well as from Trust members.
MS Views and News –
An informational web-blog (formerly known as Stu’s Views and MS News), now published by MS Views and News, a patient advocacy organization. The information on this blog helps to Empower those affected by Multiple Sclerosis globally, with educational information, news and community resources.
The MSadventures of Ms. Cranky Pants –
The profile photo is not really me. It is Drew Barrymore in the movie “Never Been Kissed.” I no longer wear braces and have overcome my aversion to washing my hair and bathing in general. But this could have been a picture of me in 7th grade [shudder]. Entertaining as it no doubt would be, I did not create this blog to discuss my personal hygiene, unless it becomes absolutely necessary. I will, however, frequently discuss the hygiene (or lack thereof) of my cats. You’ve been warned.
Musings of a Cranky Caregiver –
A Blog About the Random Stuff that Floats Through My Brain. Retired, late 50s, caregiver to my wonderful wife who has multiple sclerosis and to 3 dogs – Ruby, Addy and Dakini. Seller of anything I can make a buck from.
Musings of a Mad Sow –
Grew up in Winchester, Mass. Went to University of Washington for a year, then transferred to Queen’s Nursing in Kingston, ON. Degrees from the London School of Economics and the London School of Hygiene and Tropical Medicine. Retired from nursing due to MS, now writing and living in Dartmouth Nova Scotia, a.k.a. paradise….
My New Normals –
My name is Nicole Lemelle. I am a writer, an activist, and a person living with Multiple Sclerosis (MS). I created My New Normals to educate those who do not understand MS, reassure people with similar plights and inspire everyone to seize command of their lives.
My Odd Sock –
My Odd Sock is a popular and much-loved blog that is run, apparently, by an odd sock. In seriousness, the blog is one person’s light-hearted and humorous approach to dealing with the effects of MS. It contains a selection of jokes, riddles and funny stories, complete with a selection of sometimes graphic photos and images. Not so much a source for serious information about living with MS, but more of a sanctuary for both those suffering who are suffering from MS and those who are not.
Overcoming MS –
OMS is a “positive lifestyle programme” that aims to help those with MS to live long and healthy lives. Based on scientific and medical research, the site’s blog is “committed to improving the lives of people with MS by providing the tools to enable recovery.” Blog posts are factual and contain the most relevant and pressing issues on the subject of MS, as well as book reviews, news of support networks, healthy eating and medical services.
OZMS started off as a blog about Multiple Sclerosis. However, it is now the Australian Multiple Sclerosis’ resource platform, offering information on the disease, events, support networks and medical research. It contains up-to-the-minute news relating to all-things MS, and now runs an RSS feed through the site for MS bloggers, making it a great place to not only track down valuable information, but also to meet people in similar situations.
Pajama Daze –
Discovering we have a chronic illness can be devastating and life-altering. I know what you’re going through. Illness is isolating, confronting, confusing. Our social circles start to shrink and, sometimes, vanish. Our friends and family just don’t know how to relate to us and our new situation, especially if we still look well. Our opportunities seem to dissolve before our eyes. Our get up and go, gets up and leaves. And more than anything, we want our lives back.
If I learned anything from this journey, it’s this — illness is not the end of the world. Actually, it can be a beginning of a new life, a new era. We may never get our old lives back. But life changes every day, doesn’t it? Do we really want to go backwards? We forge ahead! And we realize that not all change is bad. We’ve been offered a time to reassess our abilities, our desires, our faith and our passions and, while being realistic as well as creative, we sculpt a new life. We reinvent ourselves. Even if we spend most of our time in pajamas!
Peace be with you –
Hi, I’m Judy. Welcome to my blog where I present verses influenced by the haiku form, which permits me to distill my thoughts into very few words. These often nontraditional haikus acknowledge life challenges with honesty while also embracing hope and joy. My challenges include caregiving for a spouse and adjusting to my own MS. I find that these experiences on my journey can often be gifts of wisdom about life in general.
Pixel Posts –
So here is a tad of info about me. I hate writing out this stuff, but often people find it interesting, and you always see this on other blogs. If you don’t find it interesting, close the page, I won’t be offended 🙂
I am no longer young, I have passed middle age, I am not yet a senior. People call me ma’am.
I am someone’s partner, mom, gramma, sister, aunt and friend.
I am retired from paid work outside the home, due to medical reasons. Although I do miss work sometimes, I really enjoy having the time to do what I want.
I am a food aficionado, aka a foodie. I am obsessively interested in all things culinary. My “bible” is Larousse Gastronomique.
I am a vinophile (Italian, vino: wine. French, phile: lover : one having an affinity for).
I love tea and all things tea, so I guess that makes me a teaophile. (English. tea: tea. French, phile: lover: one having an affinity for).
I love the water; streams, rivers, ponds, lakes, oceans. I am happiest when I am near water.
I am not religious but definitely spiritual.
I have a plethora of hobbies, but I will not bore you with them at this time.
I am a collector of sorts…all sorts of stuff!
I own a beautiful walnut 36 string lever harp, and on occasion I can actually eek out a few notes that resemble music.
I have eclectic taste in music, but a couple of genres are just a lot of noise as far as I am concerned. That being hip hop, gangsta, and death metal.
Television and movies are of little interest to me. I prefer living my life to the fullest, rather than watching the simulated stories of other’s lives. I have been known to watch FOOD NETWORK MARATHONS though.
I read a lot and prefer non-fiction. I love my Kindle!
I also like to write, haiku mostly, so I have another blog – SOMETHING WRITTEN .
I have strong opinions regarding just about everything. I don’t think like the majority of society, and I am often misunderstood. I definitely march to the beat of a different drummer, and although this often irks others, I am not bothered by it at all.
Oh ya..I also have Multiple Sclerosis, (but I am really only in it for the parking permit 🙂 I have recently been diagnosed with Transverse Myelitis and Systemic Lupus as well. Autoimmunes diseases are like potato chips…you can never have just one!
sherri’s takes: intentions
I have been a gypsy, a lover, a mother, a daughter… a granny, a friend, and a peace-keeper. Some call me their own personal Forrest Gump. I have traveled to many places; I have worked in many jobs… I have studied many subjects…
As a result, I know many things about many things, but not everything about anything.
I am so very glad you are here to experience this mess! Sit back, kick off your shoes and stay a while…don’t forget your coffee (or adult sparkling beverage if needed)…
My name is Sherri, and most people call me Sherri. (Although there are some who may or may not have other names for me) I’ve recently celebrated the 27th anniversary of my 21st birthday next month and that is something I’m finding hard to reconcile in my 14 year old mind.
I hail from the big ol’ state of Texas, where the mosquitoes are the size of sparrows and the heat is the equivalent of being dipped in a boiling vat of water. (think excessive humidity with that flippin’ heat)
I have had MANY life changes in the past few years – the first two are the most important.
1) I was diagnosed with multiple sclerosis in September of ’10
2) I was married to my best friend
A Short in the Cord –
Multiple Sclerosis is a chronic disease that affects the brain, spinal cord, and optic nerves. The protective cover around nerves gets worn away, causing a disruption in the electrical impulses. In other words, some nerves have shorted out.
This blog is my way of trying to reconnect the frayed wires of my life.
Side Dish of MS –
When life decides to throw a bowling ball in your direction instead of the occasional golf ball…
Click here to Link to many other MS blogs from Side Dish of MS.com.
Stuff could always be worse –
I never thought about being an MS blog when I thought of a name for a blog. I just wanted to say that I was grateful for the life I was living.
Ugly Like Me –
What began as a diary of sorts to help me cope with Multiple Sclerosis, has turned into a book of portraits I have painted that, more often than not, have very little to do with MS. This is for the artists who taught me the most beautiful things come from pain, and my sister, Stacey, who also has MS…